Irreducible Subjects: Disability and Genomics in the Past, Present and Future
October 6-7, 2022
The National Human Genome Research Institute (NHGRI), part of the National
Institutes of Health, and the State University of New York at Buffalos Center
for Disability Studies will hold a two-day symposium entitled, Irreducible
Subjects: Disability and Genomics in the Past, Present and Future." Please
join us on Oct. 6-7, 2022. Sessions begin at 10 a.m. ET. They are free and
open to the public.
On day one, we will explore past and present injustices to identify some of
the fundamental structural, conceptual and practical realities present at the
intersection of disability, bioethics and genomics and ask how we can promote
disability justice in genomics and bioethics research. We will also examine
genetics and disability across the life course, from prenatal screening to
later life, showing how constructions of disability based on genetic
information constrain expectations about individuals worth, personhood,
rights and health outcomes.
On day two, expert panelists will discuss the role of genetic and genomic
science and medicine in generating and sustaining racialized and gendered
violence both physical and epistemic against disabled people and
marginalized communities. We will conclude the day with a talk about the gap
between genetic narratives of disability and the potential for flourishing in
disabled lives. We will challenge the research community to recognize the
authority of lived experience and to incorporate collaborative methods to
promote diversity and inclusion.
Keynote speakers include Dennis Tyler, Fordham University professor and author
of Disabilities of the Color Line, and Jaipreet Virdi, University of
Delaware professor and author of Hearing Happiness: Deafness Cures in
History. Additional expert panelists will discuss how disability and ability
are connected to both historical and present-day eugenics, scientific and
structural racism, heteronormativity, misogyny, imperialism and colonialism.
Register now on genome.gov:
https://www.genome.gov/event-calendar/irreducible-subjects-disability-and-gen
omics-in-the-past-present-and-future
This event will be presented with real-time captioning. American Sign Language
Services will also be provided. Please direct additional requests for
reasonable accommodations to NHGRIhistory@nih.gov.
--
Nicola Sugden, PhD
Associate Historian
She/Her
Engagement Methods Unit
Social and Behavioral Research Branch
National Human Genome Research Institute
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